CNN report on Reflex Sympathetic Dystrophy

IntheBlinkofanEye1 Says:

Oct 3, 2010 - I'm so glad you got your life back. I would like to know about your doctor''s work with anti-inflammatories.

Pinkynose499 Says:

Feb 1, 2011 - I've had RND possibly since 1st grade. I was diagnosed last year.

bestestmommie Says:

Apr 12, 2011 - Thank You so much for sharing your story. You are a very brave young women. Thanks to your parents as well for their bravery as well. God Bless!

davidsons4 Says:

Apr 16, 2011 - Thank you for sharing this story and we hope that she is doing better now that a few years have gone by.

junebug4ca Says:

Jul 26, 2011 - I have heard of killing the nerve OR giving an epiduralto ,if it happens to be in your leg,to completely numb your lower body in hopes that it will reboot your nerve.. but.. the problem is ,doctors seem to be scared to do it.

sdisalvo2011 Says:

Aug 7, 2011 - CNN REPORT

galpal502 Says:

Aug 9, 2011 - Although I am happy for this young lady, the method she used is very dangerous. I recommend instead, a non-invasive, successful treatment that my family has used for everything from RSDS to Fibromyalgia to MS. We all have a better quality of life because of Dr. Donald Rhodes and his Vecttor machine. If you are interested, go to his website and watch the testimonials. Both of my nieces have RSDS and they have dramatically reduced pain, and more active lives. Search Dr. Rhodes RSD on YouTube.

atvchick09 Says:

Aug 28, 2011 - I have tried everything and all has failed, I am 15 and have RSD full body, and it is very progressive and severe. We are right now talking about the inpatient ketamine. Im scared but I need my life back.

julius54321665 Says:

Sep 3, 2011 - I'm so sorry, my mother has had RSD for about 3 years now. I'm 15 as well, but I don't have it. If you ever need someone your age to talk to, I'm here. I can't say I know the pain you're going through, but I understand the disease & might be able to give you some tips?

clotho910 Says:

Sep 7, 2011 - I have CPRS in my lower left leg. I have been bed bound for 1 yr of 9/30/10, I am so sick of this, I am on Norco, Lyric, & Methadone. I am nothing of myself. My leg has to be levitated on a couple pillows. I can go out in the car for a hour or so switching between the dashboard &n down o the floor of the car. I'm going to try mirror therapy on my own. I'll let you know how it goes.

brynnybrynnbrynn Says:

Sep 17, 2011 - i hav tht

LipglossLullaby21 Says:

Sep 20, 2011 - I have it in my right hand, I'm 17.

atvchick09 Says:

Oct 27, 2011 - I am 15 and have it full body with organ involvement!

530BigBen Says:

Nov 2, 2011 - they should be prevented at all cost

misstinywho Says:

Dec 11, 2011 - My 12 year old has this. It is heartbreaking to see her crying and there is nothing I can do.

MissJessyeNorman Says:

Dec 14, 2011 - Very insightful of you to say that! Lyme disease can trigger RSD, so there may be some yet unknown correlation, although it is different. Classically, RSD is triggered by a minor physical injury, like spraining an ankle; some poor souls have the type of RSD that starts all on it's own, without any initial injury at all. RSD is also considered by far the most painful chronic pain that one can suffer, so I imagine that Lyme disease is less painful, although I'm sure it's awful too.

kepleygal Says:

Dec 16, 2011 - i have this....it's a life of pain, and only pain!

Zivilein Says:

Jan 11, 2012 - I have CRPS on my right arm. My whole life turned upside down. I'm living in Germany. I never met a doctor who do ketamine treatment. So it would be really interesting where Dr. Schwarzman send his patients! Maybe you can send me an email to tell me? Email: christine.tertilt@gmx.de Thanks for letting me know! I hope that we all find cure someday!!!! xx

516morgan Says:

Jan 15, 2012 - I have CRPS/RSD in all my limbs and it too spread...started from my left leg to my right then my arms, and now have organ involvement i used to be much much worse and had to learn to walk again, i finally found the right meds that keep the edge off and numb the outside so i am not so hypersensitive and i do have super high pain but it used to be worse, ironically i was a dancer too and i love fashion as well i was diagnosed when i was 12 and i am now 16 and living with RSD

chronicallyjillian Says:

Jan 19, 2012 - Killing the nerve is a really bad idea because it won't cure the pain. Burning nerves or killing them is NOT recommended anymore... any doctor who is current with literature should know better treatment options. Patients who burn the nerves in order to kill them end up in worse shape than they were before, which is saying something!As for the epidurals - I think you're talking about nerve blocks. They inject a lot of medicine into a nerve - for example if your right arm

chronicallyjillian Says:

Jan 19, 2012 - is affected into your stellate ganglion nerve, hence you get a stellate ganglion nerve block - to try to put your nerve to sleep in hopes that when it wakes up it will have reset itself and will work properly. Nerve blocks are more likely to work the earlier into RSD onset they are done. Generally you should not have more than 9 of them. Doctors who recommend blocking the nerve over and over and over with no result are likely doing it because they make a lot of money from

chronicallyjillian Says:

Jan 19, 2012 - the blocks. If you're getting a block that is trying to treat RSD in your legs you get the shot in your spine.

ShotgunBarbie1 Says:

Jan 31, 2012 - I have suffered with RSD/CRPS in my right leg for 7 yrs. Dr's had me on an INSANE amount of opiots and benzos along with countless spinal injections. I was hopeless and my life had become disasterous. The pain was not getting better. But worse. I found Dr Peter Pretzkop who runs the Pain Track at BFC in CA. When I arrived, my leg was blue, cold, swollen, chronic and lifeless. It is now pink, warm and works just like the other one! And I am drug free. There is hope! Look him up. I have a life now