andy&sofia
Andy & Sofia by Andres Trevino at Enders Auditorium
Children's Hospital Boston Enders Auditorium March 31st. 2009
Tanya, Andy & Sofia visit the Cookes
Tanya, Andy & Sofia visit the Cookes in London; 7-10 August 2008.
Martin Marek: Andy & Sofia before sleeping (01/19/2011)
English: Andy & Sofia brushing teeth in bathroom before sleeping Cesky: Andy a Sofinka si umivaji zuby pred spankem
Crawling Neutrophil Chasing a Bacterium
This video is taken from a 16-mm movie made in the 1950s by the late David Rogers at Vanderbilt University.
Hit the road Jack!
In memory of Jack Hagelin Sept. 04, '02 - Mar. 27, '07 * I posted this video June 03, '06 after he was discharged from the transplant unit. Jack Passed away peacefully surrounded with Love at the Children's Hospital of Philadelphia, from complications from pneumonia and after a 4 and ½ year battle, a diagnosis of NEMO Primary Immune Deficiency and Ectodermal Displasia, two rare genetic disorders. His treatment included a Stem Cell Bone Marrow transplant. In his short 4 and ½ years he helped science gain more knowledge for this rare genetic condition and through this knowledge to help other children with this same condition. www.cure4jack.org Think about it, you could easily save a life by joining the National Bone Marrow Registry which is changing there name to The Be The Match Registry. www.marrow.org will get you to the information you need to join.
Mas En Vivo, Andres Treviño
Mas En Vivo con Karla Medina. Special guest: Andres Treviño, author of Andy & Sofia. www.andy.org.mx You can buy the book at Amazon.com. Children's Hospital
Ray Charles - Hit the road Jack!.avi
In memory of Jack Hagelin Sept. 04, '02 - Mar. 27, '07 * I posted this video June 03, '06 after he was discharged from the transplant unit. Jack Passed away peacefully surrounded with Love at the Children's Hospital of Philadelphia, from complications from pneumonia and after a 4 and ½ year battle, a diagnosis of NEMO Primary Immune Deficiency and Ectodermal Displasia, two rare genetic disorders. His treatment included a Stem Cell Bone Marrow transplant. In his short 4 and ½ years he helped science gain more knowledge for this rare genetic condition and through this knowledge to help other children with this same condition. www.cure4jack.org Think about it, you could easily save a life by joining the National Bone Marrow Registry which is changing there name to The Be The Match Registry. www.marrow.org will get you to the information you need to join.
Hit the Road Jack (Ef.Christos cover)
Hit the road Jack! Ef.christos Acoustic cover www.facebook.com
Martin Marek: Sofia & Andy @ home (01/12/2011)
English: Andy & Sofia playing at home Cesky: Andy si hraje ze sofinkou doma
Martin Marek: choo choo train (01/14/2011)
English: Andy & Sofia are playing with the bubbly choo choo train Cesky: Andy a Sofinka jsi hrajou s vlackem keri dela bublinky
Andy & Sofía Trevino CMN - Champions Across America 2009
Andy Trevino has spent more than 1000 days in the hospital. Hes celebrated birthdays, Christmases and New Years Days surrounded by nurses and doctors. Born with Primary Immune Deficiency (PID) NEMO, an extremely rare genetic mutation that caused his immune system to fail, Andys prognosis was dire. His parents were desperate to save him. With only 62 cases of PID NEMO worldwide, there was little medical precedent to help them. Andy received gamma globulin infusions every two weeks to boost his immune response and a daily cocktail of 13 different medications that kept him relatively safe. He had a very isolated childhood, as contact with the germs of the outside world could prove deadly. Childrens Hospital Boston immunologists recommended a stem cell bone marrow transplant to replace parts of Andys immune system. In October 2004, Andys baby sister Sofia became his donor. Stem cells from her umbilical cord and her bone marrow were used in the transplant. It was a success, and today Andy lives a relatively normal and healthy life filled with baseball, soccer and football. Its no wonder that Andys favorite phrase is, Sofia is my favorite sister.
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